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Me and My Dad

Me and My Dad at Disneyland back when we worked at Disney.

Me and My Dad at Disneyland back when we worked at Disney, April 2000 (scanned image)

One of the great things about having a blog is the way we can communicate instantly with our friends and clients. Because of the ease of instant sharing, there is a natural inclination to overshare. Where do I draw the line between the personal and the professional? How much sharing is too much. Well, I feel that the events of this past month warrant me getting a little personal. This is what’s been happening in our world.

As you may or may not know, my Dad is in a hospital in Boston, fighting for his life against bone cancer and pneumonia. This has come as a total shock. I have spent the better part of the past month shuttling back and forth between Nashville and Boston. Everything in my life has come to a complete halt while I’ve tried to help my Dad get better.

See the thing is, my Dad and I are best buddies.  I have an amazing relationship with my Dad. We have had so many wonderful times together and I look forward to so many more.  I just don’t know what the hell I would do without him.

About a month ago, I get a call from my sister Amandah, telling me something was wrong with Dad and they are taking him to the hospital. She called back later that night saying that he had cancer but they weren’t sure what kind it was or what the prognosis was.

Sharon and I started making arrangements for me to fly up to Boston to see him.

When I arrived, he looked emaciated. He’d lost 30-50 pounds. He had bone cancer. His kidneys are shutting down because the calcium from his bones is leeching into his bloodstream and overwhelming his kidneys. He has crushed two vertebrae because of the calcium loss so he can’t lay down in bed, he has to sit in a half hunched position. He looks worse than ET when Elliott’s brother finds him collapsed in that stream.

Over the course of a week, he got better enough to go home and continue treatment from there. I stayed a few extra days and then headed back to Nashville.

A few days later, I get another urgent phone call from my sister. My Dad is back in the hospital and he is having trouble breathing.

Two days after that, I get another frantic call from my sister telling me they need me up there right away, things have taken a turn for the worse.  I am on a plane in a matter of hours.

This time when I arrive, he is in intensive care and looks even worse. He still has the cancer and the broken vertebrae but now he has pneumonia and is unable to even talk.

For the first couple weeks, I stayed day and night with my dad in the hospital. Somehow it feels like if I can keep vigil in a crappy hospital chair at the foot of my dad’s bed, his body will sense this and fight harder, or maybe god will look down and see hey that kid really cares and send something hopeful our way. Im not really sure it works like that   but I thought that it couldn’t hurt. So I spent countless days and nights in the hospital with him.

One of the nastier side effects of the Cancer is that the Chemo that will ostensibly save his life is also causing a rare side effect called steroid psychosis.  Every few days, my dad starts to hallucinate and think outlandish things.  He rips out the IV’s and tubes in his confusion. The doctors say there is nothing they can do about this for now until they can see some progress in the fight against the cancer.

I missed my son’s birthday because of all of this. I can’t tell you how much that hurt. H turned 8 and I couldn’t be there.  That was the day my Dad almost died.  Two doctors from emergency medicine sat me down and told me that my dad had just hours to live.  I had to call everyone and tell them to get down to the hospital because everything was going sideways and the doctors said it could be anytime now.  So for the 45 minutes it took my sister and my Mom to get to the hospital, I was in my Dads room asking him to please try to keep breathing. Telling him if he would just relax and take a few deep breaths we could turn this around. He can hear me..I think he can hear me. But he refuses and shakes his head no. I look at the monitor and can see his heart rate skyrocketing while his breathing is dangerously erratic.  ”Dad, please, please don’t die today, you can’t die on H’s Birthday” he just keeps shaking his head no. I try a one man version of good cop /bad cop while sobbing like a fool. This goes on for 40 minutes or so until my Mom shows up and is able to slowly calm him down. My Dad’s heart rate starts leveling out and his breathing starts to improve.

That night I called Sharon and had her and the kids get in a car and drive up to Boston. For reason’s I can’t really go into here, my Dad has never met my youngest daughter S. I was so afraid that my dad wouldn’t live long enough for her to meet him. So Sharon dropped everything, piled the kids into the car and made the thousand mile trek north.

April 28, 2000.

For the past 2 1/2 years, my Dad and I lived together while he worked with me in Los Angeles. During that time, we grew very close and shared many amazing times.

Here we were on the last night of my Dad’s stay in Los Angeles and I wanted to do something really memorable to commemorate this. Earlier in the evening, I took my Dad to see Shelby Lynne at the House of Blues for a ridiculously amazing show. We had dinner first and then we were front row center. What up!  You can read a review of the show here

(At one point during the show, Shelby looked down at me and said “Los Angeles, you’re looking good” That’s my story and I am sticking to it.)

Anyway, after an amazing night, I wanted a really cool way to end the whole experience.

During my Dad’s time in LA we had an ongoing Steve McQueen film festival. We screened the classics of course, Papillion, The Great Escape, The Magnificent Seven, Bullitt, Thomas Crown, but we also tracked down some hard to find titles like Le Mans, The Cincinnatti Kid, Junior Bonner, amongst others.

My Dad is a big fan of McQueen from back in the day. But for me Steve McQueen really represented what I was doing in Los Angeles and how I was living my life.

Now McQueen died back in 1980 so I thought we could go visit his grave or something, but McQueen, of course, had his ashes scattered so there was no grave. So I gave this some very serious thought and tried to think about what Steve would want us to do.

(As a young man, It is very important when making many decisions to ponder what the great McQueen would do)

So In the early morning hours of April 28, 2000, I took my Dad for a ride up to Steve McQueens old house in the hills of Brentwood. Where we drank a toast to him outside the gates of his house. I remember us talking about his time in LA, I remember my Dad laughing at me when he realized we were at Steve McQueens old house and I remember tearing up when I hugged my Dad and told him I would really miss him. – All this, mind you, after midnight on Steve McQueens lawn.

So flash forward Ten years and here I am, married, with three kids, trying to make sense of what is happening in my life.

This whole ordeal has felt very surreal. Like it is not even happening. Like I am somehow disassociated from the reality of what is transpiring.  I don’t want to talk about it, my natural inclination is to just withdraw and deal with it myself. Luckily Sharon has  been helping me and encouraging me to reach out. Telling me to return emails and make phone calls.  But it has been hard.

I’ve got to get some work done. I have clients who have been extremely patient for their photos while I have been dealing with all of this, but I have to buckle down and try to put all of this aside.

I want to thank all of my friends and clients for their well wishes, support and understanding during this difficult time. it has meant a great deal.

I miss my Dad. I’m sitting here, back in Nashville, but my Dad is 1,152 miles away, slumped in a hospital bed fighting for his life and I am having a real hard time figuring out how we got from Steve McQueen’s house to here.

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June 29, 2010 - 10:27 am Amber Housley - The love you have for your Dad shines through immensely in these words. Prayers for you and your family during this time.

June 29, 2010 - 10:42 am nicole riley - i read this and just cried! my heart aches for you. please know my thoughts are with you and your family. let me know if there is anything i can do. ~ nicole, studiowed

June 29, 2010 - 11:06 am K. Crafton - My heart and prayers go out to your family....love to you.

June 29, 2010 - 11:50 am Ryan - Be strong, and allow those close to you to help you. I tried to 'gung-ho' it by myself going through a similar time, and I later wished I reached to my support blanket earlier. Your dad would much rather you be in Nashville doing the things you love and taking care of your family. Put your own kids in the shoes you're wearing now, and it will better allow you to see how your dad always wants you to be doing the things that make you happy. Even if you can do that, it's still hard - so hold on and lean on those you love and those that love you. -Ryan

June 29, 2010 - 11:51 am Lacey Saggio - J&S and family, we are so sorry you guys are going through so much. Your words are strangely beautiful and thick with emotion. You fill us up with your heart. Be courageous and stand firm and think of what he would say to encourage you if he could. We hope that you take the time you need to ease back in and work through your hurt. Thank you for sharing your heart with all of us. Love, prayers and peace we are sending out to you tonight. Lacey and Joseph

June 29, 2010 - 2:44 pm Amanda Cameron - Jonathon: That was a beautiful story..Lots of hugs and prayers to you guys,,

June 29, 2010 - 3:10 pm Rhonda Hendricks - I know your dad would appreciate this post, and your openness to share with all of us. I have tears in my eyes. I know it sounds cliche, but Joe and I are definitely going to keep your dad and your entire family in our prayers. Please let us know if there's anything we can do or help you guys with. Much love, Rhonda

June 29, 2010 - 5:08 pm The Thirty-Something Bride - Whoa, JC. You know me and The Candyman are sending our love to you and your whole family. We miss you! And if I was a total outsider looking in on this post, I'd have to say it's incredible. So well written - as all things from the heart are. Smooches, Louise

June 29, 2010 - 5:28 pm dawn - i love that picture of the two of you... the smiles i remember from too many years ago. it is hard to be so far from home... especially when home is your family. and i hate that you & amandah are dealing with something so heartbreaking... and i am praying that you are both hanging in there. praying for healing and for peace. praying that you will all hold strong to each other, and God. -Dawn

June 29, 2010 - 5:52 pm Jonathon - Thank you all so much for the kind words. It really has helped me today.

June 29, 2010 - 7:38 pm Jeff Stein - Jonathan. I hadn't heard any updates lately. I am so sorry. I hope you and Sharon know we are praying for you both and for your dad and the rest of your family. Strength, peace, and grace to you all. Bless you and let us know if we can help at all.

June 29, 2010 - 8:55 pm Mandy Whitley - We are thinking of you and happy to help in any way we can. I can't imagine what you all are going through.....thanks for sharing this story with us all. HUGS!

June 30, 2010 - 12:09 pm Mindy - You know we are here for you. Don't hesitate, we will do anything that you need. Praying hard for your Dad!

June 30, 2010 - 7:23 pm Ryan Arthur - Jonathon, we love you guys so much! Savannah and I are both praying for you, your family and your dad. I definitely teared up when I read this. Keep on pushing brother. If you guys need anything please let us know.

July 2, 2010 - 7:14 am Jen Creed - Hugs and prayers for you all....let us know if there is anything at all you need!

July 3, 2010 - 10:58 am Elaine Manganiello Baker - Please let John and his family know that he is in my thoughts and prayers. I am in shock and upset over the news. I myself have been battling breast cancer for the past year. I have 2 more surgeries to go. Chemo does make you do things that may not seem normal. Please tell John I am praying with all my soul for him. Keep me posted by e-mail; it is more private. May God bless all of you. Keep me informed please. Elaine

July 6, 2010 - 9:27 pm Jennifer & Kent Campbell - Thank you so much for sharing these beautiful memories with us, J. Take care, hugs those kids and that gorgeous wife of your lots. I know they are surrounding you with love! Your are in our thoughts and we're continually praying for you!

July 7, 2010 - 2:04 am Ryan Astamendi - We're here for you buddy. Our thoughts and prayers are with you.

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